Wednesday, April 27, 2011

CMN is awesome!

What an honor to be selected as the Maryland representative for Children's Miracle Network! Clayton is an amazing kid - you'd never know by looking at him that he has a life threatening medical condition. He loves football, karate, baseball, swimming, cub scouts and playing with his little brother Graham.

Back in May of 2005 Clayton started with a fever that never got better. After several week of being shuffled back and forth from the pediatricians office, he got sicker and sicker. His fevers were around the clock, and very high. His health was deteriorating and we couldn't understand what was going on - why wasn't our little boy getting better? He was finally sent to a local Baltimore hospital on June 1, 2005. He was there for two weeks, they confirmed a bad lung infection that was spreading but didn't know what it was or why it wasn't getting better. An ambulance picked us up and took us to Johns Hopkins Children's Center, a special hospital in the Children's Miracle Network.

We had a diagnosis within the first 48 hours at JHCC. Clayton is one of 250,000 people that have Chronic Granulomatous disease. We found out that his body doesn't fight certain mold and bacteria like a normal immune system does. This was a life threatening situation and we were against the clock to get this out of control infection stabilized. Dr. Lederman was our hero - he diagnosed Clayton almost immediately and helped with the other teams of doctors to treat Clayton. He had very, very hard to treat bacterial infection and his lungs were in terrible shape. After two surgeries, uncomfortable and painful procedures, and many tests, Clayton was victorious! It was nothing short of a miracle - a collaboration of teams and teams of people helped make Clayton better.

We are going on almost 6 years of infection free health for Clayton. He is on medication 2x/day and injections 3x/week. He is maintained at JHCC and they watch him like a hawk! We couldn't be more grateful to this hospital who saved our son - and keeps him healthy.

No comments:

Post a Comment